Patient Resources

Patient Resources

Get support and comfort from others who can relate to your experiences. Find chronic condition resources and communities here.

CROHN’S DISEASE

Centers for Disease Control and Prevention
http://www.cdc.gov/ibd/

National Center for Biotechnology Information/National Library of Medicine/National Institute of Health
http://www.ncbi.nlm.nih.gov/pubmedhealth/PMH0001295/

CYSTIC FIBROSIS

National Center for Biotechnology Information
http://www.ncbi.nlm.nih.gov/

Cystic Fibrosis Foundation
http://www.cff.org/

CF Living
http://www.cfliving.com/index.jsp

GAUCHER’S DISEASE

National Library of Medicine/National Institute of Health
http://www.nlm.nih.gov/

National Gaucher Foundation
http://www.gaucherdisease.org/

National Institute of Neurological Disorders and Stroke
http://www.ninds.nih.gov/disorders/gauchers/gauchers.htm

GROWTH HORMONE DEFICIENCY

Medline Plus: Growth Disorders
http://www.nlm.nih.gov/medlineplus/growthdisorders.html

The Magic Foundation
http://www.magicfoundation.org/www

The Pituitary Foundation
https://www.pituitary.org/

The Endocrine Society
http://www.endo-society.org/

Human Growth Foundation
http://www.hgfound.org/

HEPATITIS C

National Institute for Allergy and Infectious Diseases
http://www.niaid.nih.gov/topics/hepatitis/hepatitisc

Centers for Disease Control and Prevention
http://www.cdc.gov/hepatitis/index.htm

American Liver Foundation
http://www.liverfoundation.org/patients

HCV Advocate
http://www.hcvadvocate.org/index.asp

Medline Plus: Hepatitis C
http://www.nlm.nih.gov/medlineplus/hepatitisc.html

HEREDITARY ANGIOEDEMA

National Center for Biotechnology Information
http://www.ncbi.nlm.nih.gov/

U.S. Hereditary Angioedema Association
http://www.haea.org/

All About HAE
http://www.allabouthae.com/consumer/

IMMUNOGLOBULIN G (IVI/SQIG)

Neuropathy Association
http://www.neuropathy.org/

NIH – CIDP Information
http://www.ninds.nih.gov/disorders/cidp/cidp.htm

Platelet Disorder Support Association
http://www.pdsa.org/?Input=Continue

National Heart, Lung, and Blood Institute
http://www.nhlbi.nih.gov/health/health-topics/topics/itp/?Input=Continue

American Academy of Allergy, Asthma, and Immunology
http://www.aaaai.org/home.aspx?Input=Continue

Immune Deficiency Foundation (IDF)
http://primaryimmune.org/?Input=Continue

National Institute of Allergy and Infectious Diseases
http://www.niaid.nih.gov/topics/immuneDeficiency/pidClinic/Pages/default.aspx

NIH – CIDP Information
http://www.ninds.nih.gov/disorders/cidp/cidp.htm

MULTIPLE SCLEROSIS

Can Do Multiple Sclerosis
http://www.mscando.org/

Medline Plus: Multiple Sclerosis
http://www.nlm.nih.gov/medlineplus/multiplesclerosis.html

Move Over MS
http://www.moveoverms.org/

Multiple Sclerosis Association of America
http://www.moveoverms.org/

Multiple Sclerosis Foundation
http://www.msfocus.org/

National Multiple Sclerosis Society
http://www.nationalmssociety.org/index.aspx

ONCOLOGY

Cancer Care
http://www.cancercare.org/

The Myelodysplastic Syndromes Foundation
http://www.mds-foundation.org/

NCCS – National Coalition for Cancer Survivorship
http://www.canceradvocacy.org/

People Living with Cancer
http://www.oncology.com/

The Wellness Community
http://www.cancersupportcommunity.org/

Cancer Hope Network
http://www.cancerhopenetwork.org/

American Cancer Society Survivor’s Network
http://csn.cancer.org/

RHEUMATOID ARTHRITIS

Center for Disease Control
http://www.cdc.gov/arthritis/basics/rheumatoid.htm

American College of Rheumatology: Patient Resources
http://www.rheumatology.org/practice/clinical/patients/diseases_and_conditions/ra.asp

Arthritis Foundation
http://www.arthritis.org/rheumatoid-arthritis.php

Medline Plus: Rheumatoid Arthritis
http://www.nlm.nih.gov/medlineplus/rheumatoidarthritis.html

National Institute of Arthritis and Musculoskeletal and Skin Diseases – Rheumatoid Arthritis
http://www.niams.nih.gov/Health_Info/Rheumatic_Disease/default.asp

Rheumatoid Arthritis Support Network (RASN):
https://www.rheumatoidarthritis.org